Bcureful and the Tuberous Sclerosis Alliance announced plans to formally combine efforts, specifically by establishing the Bcureful Travel Fund at the TS Alliance.

WE DID IT!

We are excited to share that Bcureful and the Tuberous Sclerosis Alliance announced plans to formally combine efforts, specifically by establishing the Bcureful Travel Fund at the TS Alliance. Created in December 2018 by Bcureful and formerly known as the TSC Travel and Lodging Patient Assistance Program, the fund provides patients diagnosed with TSC with financial assistance for travel and lodging related to participation in a clinical trial or furtherance of treatment for the disease and is administered by the National Organization for Rare Disorders, Inc. (NORD).

Learn more about this collaborative effort and the Bcureful Travel Fund here: https://www.prnewswire.com/news-releases/bcureful-and-tuberous-sclerosis-alliance-announce-plans-to-combine-efforts-300972806.html

Anyone in the TSC community needing travel fund assistance can find out more by contacting NORD at (203) 616-4320 or TSCTravel@rarediseases.org.

Want to donate to the Bcureful Travel Fund? Click the link below! Be sure to add a memo that you’re donating to the Bcureful Travel Fund.

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Did You Know?

  • TSC is the leading genetic cause of both Epilepsy and Autism.
  • Up to 1 million people worldwide have TSC.
  • 85% of people with TSC experience seizures, of which 40% have intractable epilepsy.
  • TSC occurs in all races and ethnic groups and in both males and females.
  • About 1/3 of people with TSC inherit the disease, while the other 2/3 result from a spontaneous mutation.
  • Approximately 50,000 in the United States have TSC.
  • Autism occurs in about 50% of people with TSC.
  • TSC affects an estimated 1 in 6,000 live births.
  • TSC impacts no two people in the same way – even identical twins.
  • Currently, there is no cure for TSC.

*Facts provided by TS Alliance

Our Mission

Bcureful is dedicated to connecting patients to expert medical care and creating opportunities to advance research towards a cure for Tuberous Sclerosis Complex.

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